Is Caffine a Trigger?

I have stopped drinking coffee in the morning which has helped somewhat. I still take florinef twice a day and am drinking a lot of fluids. I have had one episode this week while I was alone in the house and one last week where I went to the hospital yet again.

They do nothing but give me blood tests in the hospital but I end up going because it really feels like I am dying.

I had a brain scan this week to see if it is seizures and I'll know by Thursday. I got the results of my sonogram from the gastrointestinologist and it said I have a fatty liver, I don't drink except for wine when I go to a restaurant and I have stopped drinking even that since August.

In January, I go to an electrophysiologist to test the electrical firing of my heart.

Life is indeed a mystery.

Beth

Is this a vicious cycle?

I went to a new cardiologist on Monday whon said that my symptoms were vaso-vagal but that the tingling was not. He hypothosized that maybe I was hyperventilating which caused the tingling and felt my symptoms were stress related. He also told me to take fluronef twice a day instead of just once and also prescribed a new medication which constricts blood vessels.

At first I felt defensive that he was suggesting that my illness might be psychosomatic but on further reflextion, I realized how frightened I am of having these episodes, so maybe I am making them worse by focusing in my symptoms.

I took the new medicine on Monday afternoon and it made me feel really lousy. My husband convinced me yo stop taking it. However, I did double the dosage of fluronef to .2mg. Tuesday morning I took the medicine and felt alright but really scared of recurring symptoms so I called my daughter to take my mind off it. It seemed to do the trick and I was able to shopping by myself later in the day. Again I was nervous and kept trying to relax. Today , I am feeling good and went to get a pedicure. No problem, but I am still skittish. I plan to go food shopping again later but am eating and drinking plenty of fluids first. I also am eating high salt foods like pretzels as recommended by all the doctors I have seen so far.

Between the medicine, change in diet, and relaxation techniques there might still be a life after vaso-vagal syncope.

Beth

Mornings are the Worst

I wake up feeling fine but around 9:00 I start feeling ill. I feel tingly and walking around seems to help somewhat.. My huband rubs my legs and I seem to recover. It recurs over a few hours and by 1:00 I seem to feel normal.

Friday, I went to an internist, who had no answers, but referred me to another cardiologist for further testing. The mystery continues.

Beth